One step forward, two steps back?

Update:

Chris did very good with chemo this week. He was in great spirits even with some set-backs, pH level delays again and a bad reaction to the Rituxan. However, after a CT scan we learned some great news and some difficult news that was very overwhelming. The good news is-the large tumor that was the size of an egg is now smaller than a golf ball after only 2 treatments-it is very responsive to the treatment. Bad news is the smaller lesions/tumors that reside intraventricular have grown. They don’t seem to be affected by the chemo. A MRI confirmed this. In the past few days, Chris has experienced some headaches and blurry vision in the left eye. Dr. Xavier has increased his steroids, which means he has put on some steroid weight, become very irritable and weepy and is eating like he’s starving again (check out the public “feeding chris” calendar now under events on this website). After much discussion with Dr. Smith, our new addition to the team, a radiologist, both Dr. Xavier and Dr. Smith have come up with the following cutting edge treatment to BLAST THOSE SUCKERS!

-Once back in San Diego on the 26th, Chris will have 5 days of localized radiation (localized is much better/healthier than whole brain). Then he will do his 4th session of chemo, followed by a CT/MRI. If there appears to be shrinkage in the intraventricular lesions, they will then do one dose of “spinal tap” interthecal chemotherapy (extremely painful, but very effective).

In the mean time, Chris will still be taking his trip back to OH and CT. He will probably be sporting a new hair-do, or lack there of, and a pirate eye patch for his left eye. Make sure you are HEALTHY when you come to visit and really keep things calm-Howard, Brad!

Thank you all for your constant love and support, Say

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2 Responses to One step forward, two steps back?

  1. Christy says:

    Hey Sayer,
    Thanks for taking the time to update the blog. I know you are busy with everything you have going on. I hope the trips back east go well, and hopefully we will catch up again with Chris later on. Take care of both yourselves!

  2. Joe McKenna says:

    Thanks for the updates Sayer – it really helps Chris’s remote support network keep abreast of the situation. Sending you and the pirate positive vibes and strength!

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