Message Board

Hello Everyone! Family, Friends, Co-workers, Strangers who happened upon this page….

This is a designated area for visitor comments. Please use this area for messages, stories, words of encouragement, etc.

79 Responses to Message Board

  1. Hello! Welcome all to the PUBLIC message board. Thank you for all your love and support as we climb this difficult mountain ahead of us.

    • Susan says:

      Nice start! Something to fill your time while you wait for the outcome!

    • John A. Baird (a.k.a.= "Uncle" John) says:

      Wow, Sayer! You have all the medical jargon “down pat”. I have to admit I wasn’t sure Iwas following all the complicated tretments, medications. durtions, etc.. As an OLD family friend: thanks a lot.

      I was Karen & Marty’s “Best Man” at their wedding in St. Louis. If you ever need an extra laugh: ask Martin & Karen how they met.

      NOW= Mountainman=== you have a rough road will all the needles and nasty oral drung. Have faith, you have a great med team…. you have our prayers…. and, best of all, you have Sayer!

    • John A. Baird says:

      Hi, Sayer & Chris,
      After 3 years, I didn’t know you were still maintaining this web site. From Facebook I’d assume all is well in your antique farm house.
      Love,
      Uncle John

  2. Karen Smyczek says:

    Great job on the website, Sayer. I know it was a lot of work, thanks for all your efforts for someone very special to both of us!

  3. Alissa says:

    Love the website! I had forgotten about how “we” rescued you by the islands so long ago. You are in my and David’s thoughts and prayers.

  4. Kathy (Wilhelm) Eichhorst says:

    Hi, guy! Just wanted you to know that we are constantly praying for you and thinking of you often. Sayer, I have not had the pleasure of meeting you, but it is very clear the love and committment you have for Chris. It’s nice to know my cousin is so blessed to have you with him during this tough time. I will be sure to visit this message board often.
    God bless you both,
    Kathy, Jim, JT, and Sam

  5. Nancy Michaels says:

    God Bless you all. I am praying for you with all I have!!! Nancy

  6. Marci says:

    Great job on the website, Sayer! Thinking of you and Chris often and trying to figure out how we can send bacon in the mail–but it’ll be that somewhat inferior Canadian bacon…does that still count?!

  7. Janet Boron says:

    The website is fantstic. I hope you know that you and Chris are in my prayers daily. I know that Chris is on Chemo today. Karen told me about the “roommate” problem. You are so amazing to keep on top of everything that comes up. I hope you get some much needed rest when you finally get to visit your family in Connecticut. I am looking forward to seeing Christopher when he is in Cleveland.

  8. Best Friend the Other says:

    Hi Sayer and Best Friend,

    This page is a wonderful idea, and nicely constructed. I had no idea that you were all so multi-talented. Keep climbing.

    Best Friend the Younger

  9. Nick says:

    Nice job with the website!! The bio and pictures are fun and heartwarming. I think everybody can learn a little something from this site.

  10. Patrick Green says:

    Best of luck Chris, Sayer would need a couple of extra pages if she were to list your “Grateful Dead” experiences.. Sending plenty of good wishes your way.

    Patrick

  11. press house joe says:

    hey smeech!
    i hear you’re a mountainman. this is encouraging to all of us other porch monkeys from the press house. it gives us incentive! i like to remember the press house porch, with all the regularly irregular people hanging there. and foster.
    all the best, brother.
    and i wish i knew sayer. seems like she would fit in nicely on the porch.
    joe

  12. Sue Tiell Cooks says:

    Smeech, fight the good fight buddy! You have a lot of places you have yet to get lost in.
    Take care, and I hope to see you soon and meet Sayor. She is simply amazing and I’m so thankful she is there with you. Love you.

  13. Kelly Mohn says:

    Miss you here on the rock! Wish you the best with this new but difficult adventure, we pray you come out on top as in the past! Love Rob & Kelly

  14. James Dion says:

    Very nice website Sayer.

    Get well Chris…..there is always Mt. Everest.

    Only a few pictures of Gromit…. 😦

    Love Ya
    Uncle Jim

  15. bea clancy says:

    My words and thoughts can’t begin to be as expressive as yours Sayer..It is exceptionally well put together with so much thought, feeling ,and with deep and heartfelt devotion to Chris…..I feel your both truley blessed to have one another in your lives now and forever….Together and with God’s help you two will conquer this also! Keep the humor and the bacon and the beer.. God Bless both of you Love Bea Clancy

  16. Claudia says:

    Looking forward to seeing your dirty stinky hippie self!
    with love from your little sister 🙂

  17. Susan says:

    Hey there! Your niece and nephew are both walking into walls, losing their balance while battling ear infections! They say”We’re just like Uncle Chris, he walks into walls too”! Get out and walk Gromit! You are MOUNTAIN MAN!

  18. Keith Wilhelm says:

    What a terrific website. Wish i had come here sooner. Chris, we wish you all the best and pray for a speedy recovery. Sayer, your loving support for Chris is such a comfort for his mother. She thinks the world of you. Thank you for being there for him. I am looking forward to meeting you.

  19. Nancy Wilhelm says:

    Just stopped by to say “HI” to both of you! Great job on the website! Hey, Chris, I’ve waged that steroid war a time or two with my asthma and I still blame prednisone for at least 10 pounds! I know your Uncle Keith can tell you some stories about the “rage” part of the side effects, too, but I’m sure not writing about it here! 🙂
    Love you, Chris! Sayer, we may not know you, but I already know we love you, too!

  20. Chicken says:

    Smeech!
    Been thinking of you. You have a great nurse there, please listen and take your medicine. But remember, shrinkage is good.
    Love, prayers and positive thoughts.

  21. Lisa Altmann says:

    We love you and support you Chris! Sayer, you always amaze me……….what an awesome site to honor Chris and communicate what is going on in your lives. Keep climbing that mountain Chris, we are here for you!

    Love, Lisa, Jack and Shel (WOOF)

    • Karen Smyczek says:

      Lisa, you are a great friend! So glad I got to meet you and Jack—true friends indeed!

      • Lisa Altmann says:

        HI Karen,

        I am sorry I am just reading this! I am so sad because I think I missed getting the biscotti we got you to Chris before he leaves to Ohio! If I can’t get it in time I want to send it to you. We are so glad Chris is going home. Thanks for the sweet card too.
        Big HUGS! Lisa and Jack

  22. Karen Smyczek says:

    Have a great day! Give our love to Sayer. Looking forward to seeing you. Mom and Dad

  23. Amanda Abbott says:

    Thank you for this site Say. It allows us to journey with you both. You are an amazing woman, a perfect match for your amazing man. Can’t wait to see you both when you come out here! Expect a giant hug worthy of a Mountain Man and his Canyon Woman ❤ Love you, Amanda & Aris

  24. Karen Smyczek says:

    You’ve never done things the easy way, have you? Just another step up that mountain. Keep on climbing!

  25. Janet Boron says:

    What a wonderful break from the chemo routine this visits will provide both of you. Sayer, I hope you have some time to sleep, sleep, sleep!!! You are such an awesome woman. Our family are amazed by your strength as you help Chris climb the mountain to wellness. I keep you both in my prayers constantly. Aunt Janet

  26. Connie Martel says:

    Thank you so much for the update..You guys are in our thoughts and prayers all the time…I feel somehow we are very connected. Roger also had a bad reaction at one point to Ritoxin..The next time they ended up giving him Benedryl & Claritan and it worked…..Have a good trip to Ohio, and give our love to Chris…..

  27. John A. Baird (a.k.a.= "Uncle" John) says:

    You two pick a heell of a week to come to “The Best Location in the Nation”. It’s raining… it has been raining for the past few days. It may rain, “off-and-on” for the whole week. Chris, you know Cleveland weather. But, you are so welcome “home”!

    The Indians had an afternoon game scheduled today…. with the rain pouring down, I didn’t even try to get the game on TV. But, “how ’bout that Tribe”! At least they are begining the season with a flair.

    • John A. Baird (a.k.a.= "Uncle" John) says:

      Just ’cause iyt’s raining and nasty in Cleveland, you didn’t have to get sick.
      Hopefully, the Doctors will get you “fixxed-up”. The Cleveland rain will wait.

  28. Howard Mahoney says:

    Most excellent seeing Chris today. Key West, San Diego, Cleveland … wherever – always a pleasure. He was well enough to stand a pint with me today at the local Irish Pub. Always has the best tales 🙂 God Bless ya Smeech!

  29. Karen Smyczek says:

    Hope you’re having a good visit in Connecticut with Sayer and her family. Gather up all the good wishes from there to help you get through the next round of treatment! And make US Air pay, tell them you’ll go to the media if they don’t offer you some compensation for the shabby treatment!

  30. Maureen Klear says:

    Hello Chris! You & I have never met, but your Parents are great friends of mine & I’ve heard so much about you. (all good of course!) I just wanted to pop in & let you know I’ve been praying for you & thanking God for all the blessings He has already given you, especially Sayer. The “adventure” you are going through right now is not easy, but I know you will stay strong & hang in there. A day at a time, a moment at a time, whatever…. I will pass along to you what my Grandma always told us & it worked: “Keep the Faith.”

  31. Robin, aka, Ruby says:

    Just a quick note to tell you how much I enjoyed our visits, you always make me laugh…and if I can ever swing it out that way you two are so taking me to the places you told me about in Mexico!!
    Thinking of you and I’ll be in touch next week, won’t have internet access over the weekend…I feel the with drawl symptoms already. Give me a call tho anytime…goes for both you and Sayer.

  32. Claudia says:

    I hope you are hanging in there for this round in the hospital. Despite her initial fear of you (I mean, you ARE kinda scary), the Monster has been asking about “Uncle.” It seems you are now linked in her mind with Grandma baking cookies, so that’s a good thing!

  33. Connie Martel says:

    Sounds like you had quite a birthday…Beautiful ring…I am very happy for both of you.
    Hope all the good news keep going your way….Stay positive….
    Connie

  34. Karen Smyczek says:

    Dad and I are on a “Good News High” and hope it lasts forever. Christopher, you are a lucky man . Much happiness to you and Sayer.

  35. Kathy (Wilhelm) Eichhorst says:

    Wow, what excellent news, all around!!! We’ll continue to pray for both of you and I just know you will have a loooooooooong and healthy marriage together!

  36. Aunt Joan says:

    So happy with the good news. Love you!

  37. Roger Trujillo says:

    I love the picture of Gromits nose with the engagement ring! Congrats again!

  38. Joel says:

    I’m scheduled to be in town July 12-22 but might very well be there sooner…you know me and my ability to schedule my meetings…

    If you need anything give me a ring.
    I’ll drag you out for a beer when i’m in town. No such thing as tired.

    Joel

  39. Nancy Wilhelm says:

    Thinking of you and sending love and prayers as you start the radiation this week. Hope all goes well!
    Love,
    Aunt Nancy

  40. Karen Smyczek says:

    Monday PM

    Hope today’s treatment went as well as the last one. I still want a picture of you with the new do 🙂 Just stoppin’ by to say hi and let you know we’re thinking of you.

  41. John A. Baird (a.k.a.= "Uncle" John) says:

    Just “popped by” to say “hi”! I had an “up-and-down day: (~~check out my Facebrook profile.) Hope you did better than I did. Wsh I had a cute chick, like Sayer, to be my”cheer leader”.
    Continue tohang-in there!

    Uncle John

  42. Janet Boron says:

    Happy 4th of July you two. I hope your weekend get-a-way is all you hoped it to be. Maybe this will give you time to recharge your battery for the next round of chemo. You and Sayer have been so brave and awesome from the beginning of this journey. In my heart, I know you two will conquer this challenge and it will make you so strong. Love and prayers for both of you. Aunt Janet

  43. Karen Smyczek says:

    Be nice to the nurses, they have ways of getting even!! No spitting out pills, no pulling out IV’s. Hope these 6 days pass quickly. Will call you soon. Love you! Mom

  44. John A. Baird (a.k.a.= "Uncle" John) says:

    Hi, Sayer and Chris,
    Sorry if it seems if I’ve neglected you. I had a few “problems” I had to attend to: like having 2 teeth extracted and replaced by a lower plate. Ug! Then I had my facebook and bank account “hacked” for $247. Took awhile to get that fixxed ~~ and my recovering from self anger.
    But, TODAY (Wed., 7/6) was a good day for me. Knowing what Chris has to go thru: I hope it was a good day for you two, also/anyway!!!
    God bless!
    Uncle John

  45. Karen Smyczek says:

    Just sayin’ HI. So glad this session went better than the last one. Sounds like Sayer is keeping you well fed.

  46. John A. Baird (a.k.a.= "Uncle" John) says:

    Guess I should feel quilty for not writing…. I’m glad you’re out of the hospital (for now), and can enjoy some of Sayer’s home cooking and home loving.
    We’ve actually been having nice (hot) summer weather in C-Town. I’ve 2 picnics this weekend. Tho my mobillty is limited, ~~like you~~ I enjoy the “great out doors”. Hope you get some time out in the parks, etc..
    Take care — and be blessed.

  47. Joe & Monica Ols says:

    Chris & Sayer ~ You two are an inspiration to us, and probably many others … of how God will provide the strength and grace to persevere in spite of how seemingly insurmountable a situation may be. Some of that “grace” may be in the form of others who come along side, or a surprise of some sort just when it is needed most, that will lift and give a renewed outlook. We have come to love you both through this site, and seeing your personalities and character. May God continue to bless and guide and give His fatherly love to you both. Joe & Monica Ols (friends of your parents)

  48. Janet Boron says:

    Hello to both of you. Chris, I have heard that you have been self-conscious about your moon face. it WILL get back to normal once you are done with the steroids. My cousin who has Lupus went through the same thing when she was younger than you and she looks beautiful now. It took a while for the puffiness to disappear but she wants you to know that this is only temporary. Remember that you are on “the right side of the grass” and we all want you to stay there. You are fighting this crap bravely and you have a great ally in Sayer. Give her a big hug every day–she is one in a million and you two are blessed to have found each other. Love and prayers, Aunt Janet

  49. Karen Smyczek says:

    AWESOME NEWS! So happy for you and Sayer! Love you both. Mom and Dad

  50. John A. Baird (a.k.a.= "Uncle" John) says:

    Hey, Guys: just hear the grreat news that you getting near the begining of healing, Sayer,
    I know he couldn’t have it without. + I don’t know what you believe about “a Higher Power”,
    but there has to “some one” out there watching out for you. The same “Power” that saw
    your Dad thru cancer and strokes. The same “Power” that has guided me thru 76 years
    of Cerebral Palsy.
    THANKS!

  51. Karen Smyczek says:

    Just another bump in the road. Sorry you had to give up your week-end. You owe Sayer BIG TIME!

  52. John A. Baird (a.k.a.= "Uncle" John) says:

    I sent a couple messages via Facebook. Codensation: you’ve beaten all the oother challamges, you & Sayer will beat this one, too. And the mountains AND the beer will be there when you get over this “inconvience”

  53. Susan says:

    Thought you might like to hear about the Girl Scouts Day at Put In Bay. It was horrible. The kids and families had gotten the all day passes to go sightseing. They were told Perry’s Monument was open again. It was not. Then they went on the cave exploration trip. All the scouts were told to purchase the hard hats with flashlight on top for seeing in the caves. All bought them, then were told they had to get batteries. The service that was received at lunch was awful. The girl serving them spilled food all over patrons. (Just like when your little sister was working the island, lousy service) The final adventure was going to the Winery. 9 people came home sick from the trip. The island is never going to be as good as when you worked there. The girls voted never to take another trip there again. So since you have left PIB the place has gone down hill. But if you can manage to come back from the brink of death, maybe there is hope after all. We’ll see if things really can return to “normal”.

  54. John A. Baird (a.k.a.= "Uncle" John) says:

    Hey, Girl Scouts== “BE PREPARED”!
    Excursions can be fun…. then they can also be a pain in the ass.

  55. Hi Chris……Wishing you well……Hope you are feeling better and the treatments are working….The cancer being gone was the best news ..I enjoy the blogs Sayer and you are truely amazing people..your strenght and courage are inspirational…..Keep up with your positive ways..We are praying for your recovery and to get over another bump in the road

  56. Maureen Klear says:

    Hey Chris ~ just a little note to let you know your friends in Florida continue to pray for you!! I know the docs are doing all they can to get a handle on those blood clots, you are in excellent hands. Just keep that positive attitude & Smyczek sense of humor going.
    Sayer ~ I think it goes without saying, but I’ll say it anyway ~ Thank God for you!
    You guys take care ~ I really really wish I lived closer to you, cuz none of my friends around here like to play Yahtzee…
    : ) *God Bless*

  57. John A. Baird (a.k.a.= "Uncle" John) says:

    Hi, Chris & Sayer,
    So glad to read thhe cancer is “gone”! Now, you’ve got the rest of the body to get in balance. You’ll do it: fine. You’re still n my (invissable) “prayer list” [folks I try to remember when I talk to my Lord].
    Didn’t know you were a Yahtzee fan. There’s no one here that knows that game, either. But, I have a computer version that your Dad gave me at my retiement party (12 years ago)…. wish I could send it to you,
    Take care ~~ keep healing: both of you!

  58. Karen Smyczek says:

    Just sayin’ HI! thought you needed a new message.

  59. Janet Boron says:

    Wow, your abdomen looks really hideous. I hope that some of that bruising is fading. It does look like a giant tattoo. You do manage to come up with new twists to get your picture taken!!! I thought your leg looked pretty good. You can tell it is bigger than the right but, with any luck your body will absorb the bleeding in your muscles. Geez, try to stay out of trouble. Sayer should be qualified as a super medical sleuth. She is amazing. You are so blessed to have her. I am so happy that you two are planning a wedding next year. That will be a great celebration!!!

  60. John A. Baird (a.k.a.= "Uncle" John) says:

    I think I send a mesage via Facebook, earlier today. Right? ‘m not quute as old as your dad, but the memory cells are getting in a “slow” mood ocassionaly. Hope you’re inprovimg, and will soon be out of the hospital ~~and can eat REAL food.

  61. Joe & Monica Ols says:

    At the top you say to use this for messages and stories. I have a story. About my big red mark. Yours looked like the Great Lakes? When I saw mine, it looked like Australia.

    I think it was either June or July of this summer. I was washing my hands and noticed in the mirror a large dark spot on my neck, right side, toward the back so it was kind of hard to see. About the size of a small child’s fist (a little bigger than a golf ball), irregularly shaped, like Australia. What’s going on? When and why did that happen? I felt it; didn’t feel warm. Joe gets these on his hands from time to time, and they go away… slowly. Aunt Mary used to get them in the nursing home when they had to take blood from her hands. I always thought it was the result of blood vessels or capillaries oozing blood into the surrounding tissue. But why me? I hadn’t remembered exerting myself, and certainly didn’t remember banging myself on the neck.

    I wondered if Joe remembered seeing it as we ate lunch on the patio … or at the kitchen table this morning, I went outside to find him. He stopped the lawn mower, looked it over, and said he hadn’t seen it. He was as puzzled as I was.

    What could this mean? Should I report it to my doctor? Should I drive up to show him? Should I drive at all? I decided to take a couple digital pictures. I marched back to the big mirror to get a better look, and twisted my arm around my head to get a full picture. One was too light, another got mostly my hair and just a little of “Australia,” but finally a couple turned out okay. I didn’t know what I would do with them, but was glad a got a clear picture.

    Injuries; apply ice. That’s what I seemed to remember. I don’t like cold or ice. Well, I didn’t want more bleeding, so maybe ice would be good. However, I wouldn’t want the blood to get cold and form a blood clot, either. I didn’t know what to do. I folded a white washcloth, put it under cold water, and held it to the spot for a while … then removed it. I noticed a smudge on the washcloth. I put it up again, and very gently rubbed. The washcloth was MORE smudged.

    Ah-ha! I figured it out! Yesterday I had colored my hair, and this must have been some of the hair color product that stained my skin, and I didn’t notice it to wash it off! Medical emergency solved! (I kept the pictures, though.) MLO 9/9/2011
    (Chris ~ I wish your “spot” could be as easily removed! Love & prayers, Monica O.)

  62. Janet Boron says:

    Just want to let you know that I still think about you two every day and am still on a direct line to Blessed John Paul II for both of you. I will always pray for you two but especially my prayers will be that you both have a bright future ahead and that your remission lasts forever, Christopher. Love you both, Aunt Janet

  63. John A. Baird (a.k.a.= "Uncle" John) says:

    Today my son, Ed, drove me out to South Euclid to get my quarterly “bo-tox” shots to limit the tremmors from C.P.. As we drove, he asked how the Smyczeks were doing. I told him of all the good news you have had ~~ and of your engagement to Sayer. He remembers playing with you guys in your folks’ back yard (~oh, so long ago~). He wondered if you remembered him. And asked tht I pass along congratulations and best wishes to you and Sayer.

  64. Hey Chris, Karen tells us you are back in the hospital for a few days. Hang in there. I am praying for you and your family, the doctors, and your health to return. You may not know who I am, but I am your mother’s first cousin. I guess that makes me some kind of uncle or second cousin or something. Some day when you feel like you need a good laugh, I will tell you some lies about your mom corrupting her YOUNGER cousin. God bless you as you trust in Him through these trying times.

  65. John A. Baird (a.k.a.= "Uncle" John) says:

    Chris: tell cousin Skip he’s going to have some wid stories to beat my telling how his mom met his dad…. during a road trip Martin & I were en route to Texas. ask about that story. [If ypu’re from St.L., y may remember me???? I was theie “Best Man”.

  66. leslie butera says:

    Chris,
    I had no idea that you had embarked on this incredible journey. I; unfortunately, am so far removed from many things, that brings me much sadness. When I was introduced to Facebook I was so happy to be reconnected with you. You and Sayer shared so many of your incredible adventures with us (as FB friends). I looked forward to logging on to see what you both had to share. I don’t log on often, but I did notice that I hadn’t heard much from you. I had no idea what you were going through. As an old friend, I am so very thankful that Sayer is such an important part of your life. You deserve someone as strong, supportive and wonderful as she is. Because you, my dear friend, are one of a kind and deserve the best. I know that you will persevere, you always do.
    Peace & love, Les (Lester)

  67. Megan Heckman says:

    Hi,

    I recently stumbled upon your website in hopes of finding out answers for my mom. She has CNS Lymphoma (NH). She was diagnosed in May 2011 and we are still battling it. She is so afraid to die and frankly i’m not ready to lose my mother. I fear for her b/c the MRI has only shown a slight shrinkage of the tumor.

    Lately, she has been very confused/slow to respond, loss of mobility due to weakness in her left side, and scared. Did you experience any of these symptoms while working on your recovery? You seem to be doing better and cancer free, so i’m curious to see if there is anything positive to look forward for her. I pray everyday for her survival. The doctors pretty much told us that they don’t know if its worth any more treatment and that they can make her as comfortable until she goes. Please give me any information you may have… I really would appreciate it.

    Thank you.

    • Sayer Dion says:

      Hi Megan,

      This is Chris’s wife, Sayer. So first off, what I have found, read, and seen is that no CNS case is alike. It is so rare and complicated that comparing patients is like comparing apples and oranges. So, with that said, don’t pay any attention to the stats you read, most of them are referring to individuals with a compromised (immunodeficient) immune system, and almost all are completed outdated. In the past five years alone new treatment types have emerged. Secondly, no matter your immune system, you can still run into problems. Chris had acute renal failure from the toxicity of the high-dose methotrexate. He also developed DVT resulting in 3 pulmonary embolisms! But he is young, his immune system is competent, he was extremely healthy and active AND most of all he had a nagging, but supportive girlfriend (me) who questioned everything the DRs did and then researched it all, all the while giving him the support he needed. A support group is extremely important in beating the cancer as well as recovering from it. Chris only experienced the confusion in the very beginning due to the pressure in side the brain, but once they got him on high dose steroids and the swelling went down, cognitively he was pretty on point. He lost alot of strength from the time spent in the hospital bed, and still today, gaining the strength back is something he fights with everyday. I dont know how old your mother is or if her CNS was primary or metastasized from somewhere else or what kind of treatments she has had, but if you let me know, I can fill you in on some of the other alternative treatment Chris has had in addition to what she has had. Also, I will have Chris respond to you also, so you can get the patients perspective. But at least you get an idea of what a loved one sees from the outside. Support, educating yourself on treatments and the disease, and a little bit of crazy faith in your mother are most important. I hope that helps in some way.

  68. Emma lennon says:

    Hi Sayer,
    Reading the above is like watching back my husbands symptoms exactly.
    Again I had difficulty getting doctors to pin a diagnosis, but once diagnosed treatment has been brilliant so far.
    My husband was 42 when diagnosed, has undergone 4 cycles of chemo which included MTX and Cytaribine….then consultant was so pleased with how tumor disappeared under treatment that he also ordered a high dose chemo which included Thiotepa etc..and an autologous Stem Cell Transplant….fingers crossed we have beaten this horrible lymphoma.
    He is now 3 weeks post stem cell….very tired but doing well….just waiting for our MRI appointment.
    Emma Lennon

    • Sayer Dion says:

      Emma,

      So glad to here that our words and experiences can help inform others and inspire in some way. From what I have heard ASCT is a very trying and tiring procedure, but with positive indications of success. We are hoping that Chris will not ever need one and he will remain healthy, but in the case of a reoccurrence that will be the next step of action. Tell your husband to hang in there, it only gets better, much better! And make sure you take care of yourself too- it is very easy to burn out because you are trying to be the strongest you can for him.

      Sayer

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